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Assistance Needed for Uliana, Who Experiences Shortness of Breath at Night

Charitable Tomsk Foundation 'An Ordinary Miracle' announces fundraising to aid 14-year-old Ulyana Kozlova's purchase of an artificial lung ventilation device and a specialized wheelchair. Suffering from spinal muscular atrophy (SMA), Ulyana experiences breathlessness at night, according to the...

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Assistance Needed for Uliana, Who Experiences Shortness of Breath at Night

Revamped Article:

Uliana's Battle: Helping a 14-year-old Tomsk girl breathe easier

Hey there!" Uliana, a 14-year-old from Tomsk, is fighting a tough battle against Spinal Muscular Atrophy (SMA), a third-type muscle wasting disease she's had since birth. Her dad, Vitally, shares her tale on the "Ordinary Miracle" fundraising site.

"Uliana's my little girl. We've known about her SMA since she was a baby. We've got three kids, and Uliana's our third. As a child, she was quite active, but after a year, the disease started taking its toll. By the fourth grade, she could no longer walk independently. We shifted to home-schooling.", Vitally writes on the site.

Uliana dreams of becoming a doctor and enjoys knitting. This year, she's finishing the eighth grade. She needs a specialized wheelchair to support her spine, and her condition is deteriorating rapidly.

"Her situation's getting worse, with a curvature of the spine appearing, and she needs back surgery. To add to that, Uliana's been experiencing breathing difficulties at night, and she needs a non-invasive ventilator to aid her respiration.", Vitally notes.

They live in a small village in the Aсиновский district, around 100 kilometers from Tomsk. "It's a long journey when seconds count, so it's crucial to have all life-saving equipment at home.", Vitally points out.

Currently, they're around 267,000 rubles short of their goal. You can help Uliana by donating on the "Ordinary Miracle" site.

Useful Tips:

For those seeking more ways to help Uliana, here's a brief guide:

  1. Reach out to Local Organizations:
  2. Charity Foundations: Consider reaching out to prominent organizations like "Podari Zhizn" (Gift of Life), "Rusfond", or local Tomsk charities via social media platforms like VKontakte or Telegram using keywords like "Tomsk charity" or "help for children with SMA".
  3. Crowdfunding Platforms:
  4. Russian Platforms: Look for trustworthy Russian crowdfunding sites such as Planeta.ru or Boomstarter. Search using terms like “Uliana Kozlova SMA Tomsk” or “ventilator”.
  5. International Platforms: If organizers use international outreach, platforms like GoFundMe or JustGiving might have Uliana’s campaign. Keep an eye out for transliterated names (e.g., “Uliana Kozlovaia”).
  6. SMA-Specific Communities:
  7. Russian SMA Advocacy Groups: Look for groups like “SMA Families” on VKontakte, or “SMA Russia” on social media, which often share urgent cases.
  8. International Resources: Cure SMA (curesma.org) might offer cross-border fundraising advice.
  9. Social Media and Local News:
  10. Hashtags: Search #SaveUliana, #SMA_Tomsk, or #Tomsk_Charity.
  11. Local Media: Check out local outlets like Tomsk TV2, tomsk.ru, or Tomsk Obzor for updates on Uliana’s story.
  12. YouTube: Look for video appeals, common in Russian SMA fundraising.
  13. Medical Institutions:
  14. Tomsk Regional Hospital: Contact pediatric departments for verified case details.
  15. Moscow Centers: If she's receiving treatment in major cities like the National Medical Research Center for Children’s Health, they may have fundraising partnerships.
  16. Be Wary of Scams:
  17. Secure Payment Links: Only donate via platforms linked by trusted organizations.
  18. Request Documentation: Legitimate campaigns often share medical certificates or hospital letters.
  19. Vitally announced Uliana's struggle on the "Ordinary Miracle" fundraising site, hoping to gather support for his 14-year-old daughter's battle against Spinal Muscular Atrophy (SMA).
  20. Uliana is a 14-year-old girl from Tomsk, and her condition has deteriorated rapidly, requiring a specialized wheelchair and non-invasive ventilator to aid her respiration.
  21. Uliana's dreams of becoming a doctor and enjoys knitting, but her condition has made it difficult for her to walk independently since the fourth grade.
  22. Her father, Vitally, shares updates about her condition on the "Ordinary Miracle" site, expressing his concerns about the long journey to Tomsk when seconds count.
  23. They are currently around 267,000 rubles short of their goal on the website, and donations can help Uliana obtain the medical equipment she needs at home.
  24. Local organizations, charity foundations, and crowdfunding platforms can be potential sources of support for Uliana's medical needs.
  25. Prominent organizations like "Podari Zhizn" (Gift of Life), "Rusfond," or local Tomsk charities can be reached out to via social media platforms like VKontakte or Telegram.
  26. Trustworthy Russian crowdfunding sites, such as Planeta.ru or Boomstarter, can be searched using terms like “Uliana Kozlova SMA Tomsk” or “ventilator.”
  27. International platforms, like GoFundMe or JustGiving, might have Uliana’s campaign if they use international outreach with transliterated names (e.g., “Uliana Kozlovaia”).
  28. Russian SMA Advocacy Groups, like “SMA Families” on VKontakte, or “SMA Russia” on social media, often share urgent cases like Uliana's.
  29. International resources, such as Cure SMA (curesma.org), might offer cross-border fundraising advice.
  30. Hashtags like #SaveUliana, #SMA_Tomsk, or #Tomsk_Charity can be used to find updates on Uliana’s story on social media.
  31. Local outlets like Tomsk TV2, tomsk.ru, or Tomsk Obzor can provide updates on Uliana’s case.
  32. Video appeals are common in Russian SMA fundraising and can be found on YouTube.
  33. Verified case details can be obtained by contacting pediatric departments in the Tomsk Regional Hospital or in major cities like the National Medical Research Center for Children’s Health.
  34. Be cautious when donating, as scams can occur. Only donate via platforms linked by trusted organizations, and demand documentation such as medical certificates or hospital letters.
Charity Foundation 'The Ordinary Miracle' in Tomsk announces a fundraising campaign to assist 14-year-old Uliana Koslova in purchasing an artificial lung ventilation device and a specialized wheelchair. The girl is suffering from spinal muscular atrophy (SMA) and experiences choking at night, as reported on the foundation's website.

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