Experiencing Communication with My Guardian Spirit Involves Iterative Experimentation
In a heartwarming display of determination, Marisa Wexler, Juliana's parent, ensured that her 12-year-old daughter with Angelman syndrome would not miss the last day of school and her special day. Despite the challenges that came with Juliana's condition, which includes anxiety, irritability, and crying, the family was committed to making this day memorable.
On this significant day, Juliana displayed a sour mood and loud screaming, but her primary form of communication was through pointing to her neck and shoulders. This was a departure from her usual means of communication, which includes gestures, sounds, and an iPad as her augmentative and alternative communication device, which she has been using for almost a year.
Despite the initial turbulence, Juliana managed to recover just in time to attend the awards ceremony on her last day of school. The source of her screaming on this day was not immediately apparent, but after calming down, she indicated that her tummy hurt. To soothe her discomfort, she was given medicine.
The day was not without its triumphs. Juliana received an award from her principal and a certificate from her teacher. The exact names of Juliana's teacher or other individuals involved are not provided in the available sources. The deep pressure technique, such as pressing Juliana's shoulders and back and giving her strong hugs, was effective in helping her manage her emotions.
The article, captured by Sabrina L. Johnson, serves as a testament to the resilience of Juliana and her family. It is a news piece about Angelman syndrome, not a source of medical advice, diagnosis, or treatment. The opinions expressed in the article are intended to spark discussion about issues pertaining to Angelman syndrome.
When Juliana's mood is particularly challenging, the family has a plan to make up for missed events. On this day, there could be no do-overs for the missed school event. But the family, with their unwavering support, ensured that Juliana's last day of school was a day she would never forget.
As Juliana's husband anxiously waited for the departure time for school, he could not help but feel a sense of relief when they finally left the house. The day was filled with its fair share of challenges, but the family's love and determination shone through, making it a day to remember.
