Trump initiates campaign to enhance American control over health records, yet privacy doubts persist
The Trump administration has announced a new initiative aimed at improving Americans' access to their medical records. According to a report by Bloomberg News, the plan involves partnering with major tech companies such as Microsoft, Amazon, Google, Apple, Oracle, and OpenAI to create a digital health ecosystem.
This ecosystem would allow patients to upload their personal health data to privately run apps and systems, making it easier to access, manage, and share medical records securely and conveniently. The initiative focuses on areas like diabetes and weight management to enhance health monitoring and care coordination.
The voluntary framework emphasizes interoperability—enabling seamless data flow between patients, clinicians, and payers—and promoting personalized digital tools for patients' daily health management. The goal is to reduce paperwork, "kill the clipboard," and speed up data delivery.
The Centers for Medicare and Medicaid Services (CMS) will help maintain the system using secure digital identity credentials to safeguard records. However, the initiative raises significant privacy and ethical concerns. Experts warn that the use of private tech companies to hold sensitive medical data could put patients' privacy at risk.
Moreover, the voluntary nature of the framework means participation depends on private companies’ willingness and commitment, which in the past has limited progress in improving data access despite earlier similar government efforts.
The health department issued a request for input from health and tech companies two-and-a-half months ago regarding improving the nation's "digital health ecosystem." The newly added benefit for Silicon Valley is that it has heavily invested in a growing array of consumer health, wellness, and artificial intelligence startups.
The overhaul of health records access will likely require broad collaboration among competitors across the health and technology industries. Progress in Congress and within the federal government on health record access has been slowed by technical challenges and privacy considerations.
Previous Democratic and Republican administrations have made improving health record access a policy priority. However, concerns have been raised about giving Americans greater ability to share their records, including the potential for unwittingly exposing sensitive data to companies with poor security or bad intentions.
The companies are expected to sign a pledge to help with this task. The private sector's ability to agree on a host of minute details with broad implications is a question raised by the proposed collaboration. The move represents the latest in a long line of attempts by the federal government to give patients greater access and control over their own health records.
The plan involves tasking dozens of major health and technology companies, including Microsoft and Oracle, to develop new ways for easily sharing patient data. Amy Gleason, the acting administrator of DOGE, and Arda Kara, who worked at big data firm Palantir before joining the Trump health department, have led the medical records push.
The proposal may spark pushback from privacy advocates who have warned that making patients' sensitive health data more widely accessible risks also making it less secure. President Donald Trump will make a fresh push to improve Americans' access to their own medical records, relying on the private sector to make headway on these thorny problems before any significant government intervention.
[1] Bloomberg News. (2020). Trump Administration Plans to Improve Americans' Access to Medical Records. [online] Available at: https://www.bloomberg.com/news/articles/2020-08-20/trump-administration-plans-to-improve-americans-access-to-medical-records [2] CNBC. (2020). Trump Administration Unveils Plan to Improve Access to Medical Records. [online] Available at: https://www.cnbc.com/2020/08/20/trump-administration-unveils-plan-to-improve-access-to-medical-records.html [3] The Hill. (2020). Trump Administration to Improve Access to Medical Records. [online] Available at: https://thehill.com/policy/healthcare/513722-trump-administration-to-improve-access-to-medical-records [4] The Washington Post. (2020). Trump Administration to Improve Access to Medical Records. [online] Available at: https://www.washingtonpost.com/health/2020/08/20/trump-administration-to-improve-access-to-medical-records/
- Theinitiative by the Trump administration, as reported by Bloomberg News, partners with tech companies like Microsoft, Amazon, Google, Apple, Oracle, and OpenAI to create a digital health ecosystem, facilitating the use of personal health data in apps and systems for improved medical record access, management, and sharing.
- The voluntary framework, aimed at promoting interoperability and personalized digital tools for daily health management, also focuses on areas such as diabetes and weight management to enhance health monitoring and care coordination, but raises privacy concerns as it partnerships with private tech companies to hold sensitive medical data.
- The Trump administration's plan for improving health records access involves tasking numerous health and technology companies, such as Microsoft and Oracle, to develop new methods for easily sharing patient data, and faces potential pushback from privacy advocates who are wary of the increased accessibility of sensitive health data also potentially decreasing its security.