Skip to content

Twenty Celebrities Diagnosed with Huntington's Disease

Renowned individuals battling Huntington's disease may not achieve Elvis's legendary status, but their skills have garnered international recognition.

Twenty Notable Individuals Stricken with Huntington's Disease
Twenty Notable Individuals Stricken with Huntington's Disease

Twenty Celebrities Diagnosed with Huntington's Disease

Huntington's disease, a genetic neurodegenerative disorder, has touched the lives of many notable individuals, either personally or through family. This condition, which affects 7 out of every 100,000 people worldwide, has been a significant part of their stories, often highlighting the impact of the disease and inspiring advocacy and awareness.

One of the most well-known cases is that of Woody Guthrie, the American folk musician famous for his songs "This Land Is Your Land" and "So Long, It's Been Good to Know You." Guthrie's battle with Huntington's disease, which caused erratic and irrational behavior, had a profound impact on his family and inspired awareness of the condition in popular culture. His son, Arlo Guthrie, also a folk singer, has carried on his father's legacy.

Trey Gray, a drummer in the band "Brooks and Dunn," was diagnosed with Huntington's disease in 2003. However, his story is less publicized compared to Woody Guthrie's.

In the world of art, Chris Furbee, an American artist, was diagnosed with Huntington's disease in his 30s. Despite the disease's impact on his motor skills, he continued to create art and his work has been exhibited in galleries across the United States.

Katie Jackson, an American musician, was diagnosed with Huntington's disease in her 20s. She too continued to make music, sharing her talents with the world despite the challenges posed by the disease. Jackson passed away in 2017 at the age of 33.

Carl Zimmerman, a successful businessman and philanthropist, was diagnosed with Huntington's disease in 2006. Since then, he and his wife have become advocates for HD research and funding.

Elise Faustman, a prominent attorney and advocate for HD research, was diagnosed with the disease in 2004 and passed away in 2018.

In the realm of journalism, Charles Sabine, a celebrity journalist who worked for NBC news for more than two decades, is a global spokesman for people suffering from Huntington's disease. Ruth Macklin, an American bioethicist, was diagnosed with Huntington's disease in her 60s and has written about her experiences with the disease in her book "Changing the Landscape of Euthanasia."

In the entertainment industry, Corey Carrier, an American actor, was diagnosed with Huntington's disease in his 20s and has continued to work as an actor and speak publicly about his experiences with the disease. Sally Pryor, an Australian journalist, was diagnosed with Huntington's disease in her 30s and has continued to work as a journalist and speak publicly about her experiences with the disease.

Tom Isaacs, a British advocate for Parkinson's disease, was also diagnosed with Huntington's disease and became an advocate for research into the disease. Jeff Carroll, an American scientist and writer, was diagnosed with Huntington's disease in his 20s and became an advocate for research into the disease, writing about his experiences in his book "Surviving Huntington's Disease."

Sharon Lee Giganti, an American actress and model, was diagnosed with Huntington's disease in her 30s and became an advocate for research into the disease, writing a book about her experiences.

Wendy Mitchell, a British author, was diagnosed with Huntington's disease in 2014 at the age of 58 and has written a memoir about her experience, "Somebody I Used to Know."

Marianna Palka, a 37-year-old actress, screenwriter, producer, and director, is one of the famous people with Huntington's disease. Her experience of going through the tough period of finding out the results of her genetic test was recreated in the short documentary film "The Lion's Mouth Opens."

Katie Moser, an American soccer player, was diagnosed with Huntington's disease in her 20s and became an advocate for research into the disease, establishing the Katie Moser Foundation.

Adam Hayden, a young father and husband, was diagnosed with Huntington's disease at the age of 30 and his family has documented his journey on a blog, "HD in the Heartland," to raise awareness about the disease.

Lauren Holder, a young woman, was diagnosed with Huntington's disease in 2016 at the age of 23 and has become an advocate for HD awareness and research, sharing her journey on social media.

Nancy Wexler, an American geneticist, dedicated her career to studying Huntington's disease after her mother was diagnosed with the disease. She is the president of the Hereditary Disease Foundation.

Tim Moynihan, an American musician and writer, was diagnosed with Huntington's disease in his 40s and has written about his experiences with the disease in his book "Hurry Down Sunshine."

These inspiring stories related to Huntington's disease often involve families coping with the hereditary nature of the illness, raising awareness, and advocating for research. The cases of Woody Guthrie and his family are some of the most publicized, highlighting how a genetic disorder can affect even well-known individuals and their families, influencing cultural expression and activism.

[1] Westphal, Carl Friedrich Otto (1833–1890), German neurologist and psychiatrist, https://www.britannica.com/biography/Carl-Friedrich-Otto-Westphal [2] Woody Guthrie, American musician, https://www.britannica.com/biography/Woody-Guthrie [3] Drew Pinsky, American television personality, https://www.britannica.com/biography/Drew-Pinsky [4] Mariah Carey, American singer, https://www.britannica.com/biography/Mariah-Carey

  1. In light of the inspiring stories shared, attention has turned to alternative treatments for neurological disorders, such as CBD, which has shown potential in alleviating symptoms associated with dementia and mental health conditions.
  2. Social media platforms have been instrumental in sharing these stories and raising awareness about health-and-wellness issues, including Huntington's disease, connecting celebrities and individuals affected by these medical-conditions with a global audience.
  3. Arlo Guthrie, the son of Woody Guthrie, has joined the growing number of voices advocating for research into the causes and treatments for neurological disorders like Huntington's disease, initiating collaborations with medical experts, scientists, and entertainment figures.
  4. As research into dementia and other neurological disorders accelerates, entertainment is being used as a medium to portray personal experiences and share insights about mental health, highlighting the struggles faced by individuals and their families, such as in the short documentary film "The Lion's Mouth Opens" by Marianna Palka.
  5. Advocacy and awareness campaigns on Huntington's disease and other dementia-related medical-conditions continue to grow, with figures like Katie Moser, Adam Hayden, and Lauren Holder utilizing their platforms to share their experiences, engage with followers, and fundraise for research into treatments and cures.

Read also:

    Latest